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Sincerely, Hailey is an 18 month old girl with Partial Trisomy 22 Syndrome. She takes nothing by mouth, and is therefore 100% dependent on her feeding tube for nourishment. Her last pump was bulky and difficult to operate, not to mention the fact that it made it nearly impossible for her to partake in games and fun activities with the other kids, as well as PT and OT activities. She would have to sit out and wait for her feeding to be done, thus further delaying her development. Or, her feedings would be off schedule in order to accommodate certain activities, thus leaving her short of her expected daily total. Now that she has the new ZEVEX Infinity, she is able to play along with the other kids, take part in her therapies on time, and enjoy life to her fullest potential, without worrying about being slighted on her daily nourishment. Thanks to ZEVEX, Hailey can now eat AND run! ZEVEX has shown Hailey and her family that removing barriers IS possible! Thank you ZEVEX! Sincerely, |
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My daughter Hailey is a very special part of our family. She has a very rare syndrome called Trisomy 22, and has out-survived most of the children ever afflicted with this disease. She’s a very happy, smiley child, and loves her family in multitudes. She is very small (less than the 3rd percentile for her height and weight), and has overcome many hurdles. She’s had three surgeries, and has yet to get her palate totally repaired. We (Mom and brothers Kyle and Seth) enjoy her very much, and hope you enjoy her pictures as well. She is truly a blessing.